When it comes to public policy there is a lot of politically correct nonsense that prevents a sensible debate on providing services for disabled children. Politicians would do well on International Day of Disabled Persons to look at approaches taken elsewhere in Europe to create a society where disabled children and their families can flourish.
Everyone loves disabled kids
Everybody loves disabled kids. Every November millions of people prance around the streets in fancy dress and newsreaders become Beyonce for the night. All this is done for Children in Need and this year we raised 20,309,747. (Or to put it another way we gave on average 30p per person). Despite this paltry sum I salute Wogan et al for trying to do something positive. But the showbizz razzmatazz of Robbie Williams joining the other members on take that on stage can obscure the reality of being a disabled child in today’s Britain. It also lets politicians off the hook.
For a large number of disabled children life is not as much fun as it should be. This is of course a euphemism, but i don’t want to fall in to a trap of saying every disabled child in the UK has a terrible time. What is however clear is that measured against their non-disabled peers, disabled children are far more likely to live in poverty, households where parents have separated or families where the carer has depression.
And then there is education – Even if you agree with special schools, you must at least admit travelling hours on a coach every day when your sister goes to the one round the corner can’t be much fun.
And finally pain. Pain is never fun, especially for a child. Again I am not suggesting every disabled child is in pain but a significant proportion of them are. Lack of appropriate medical, therapeutic, and environmental interventions can also mean that many disabled children live in unnecessary and hidden pain. This is not just about medical pain relief but about how services are provided. A wheelchair may work but if it causes back pain it is not only inconvenient it is disempowering.
Don’t want pity
Disabled children don’t need or want your pity. But they and their parents do demand that public services are designed in a way that meets their needs rather than obstructs them. The right support will enable more disabled parents to work and to go some way to preventing family breakdown. But more importantly it will give disabled children the life chances they deserve.
Of course one answer to improving the lives of disabled children is to throw more money at the services they use. The Department for Children, Families and Schools in England is doing this by is investing almost half a billion pounds in additional services for disabled children .
Danish model
Given however a tightening of the public purse its worth looking internationally at what can be done most effectively with the resources available. In a report titled Participation in life situations of 8-12 year old children with cerebral palsy academics looked at how and if a group of disabled children participate in everyday activities across a range of European countries. In this context participation often simply means joining in with activities that other children engage in.
Out in front came Denmark and this could provide a model for how services are designed in the UK. The Danish model goes way beyond the strictures of our Disability Discrimination Act but actively promotes the inclusion of disabled children in everyday activities. A good example of this is that Denmark has a public system of after school clubs attended every day by most children up to age 12, whether disabled or not. Denmark also invests in national resources for providing information to families of disabled children about assistive technology
United Nations Convention on the Rights of the Child
Given the above – and that that the UK Government formally adopted the United Nations Convention on the Rights of the Child – participation should be the key to any future strategy for improving the lives of disabled children.
The challenge is how to make this a reality.